Looking back through my journal again. Even as I delighted in the expansion of my toddler’s attempts to use his limited communication skills to include other people, I was also becoming more aware of the differences between him and other children his age. I tried to follow as much of the therapists’ advice as I could at home, but the advice wasn’t specific to our child, and it wasn’t always a good fit. Trying different things, making observations, and building on whatever seemed to be working was usually a good way to go. That’s still the approach I find myself using today.
August 30 – September 2
Connecting with others:
Too much stuff to remember all of it. Highlights from our trip included the following: Simon really seemed to recognize and be happy to see each of the grandparents and to feel safe being left alone with them. He also seemed to genuinely recognize each of the houses, even K and S’s, and to go straight for the stuff he had enjoyed there on his previous visits. Despite developing a cold and spending lots of down time watching videos (especially the new Pooh one), he spent lots of time playing and paying attention to people, especially the kids. Simon played peekaboo with A for quite a while and seemed to be having a terrific time and trying to communicate with him like he would with me or his dad. He played with toys on the kitchen floor with E and did pretty well, even though he kept trying to be in charge of all the toys. The trip really showed how much progress Simon’s made lately compared to the last time everyone saw him. He recognizes people and places, he seems to have developed a real bond with his grandparents, and he waves spontaneously and frequently now and uses his hand signs and pictures to communicate with anyone he can.
The little guy seemed incredibly wired and stressed after breakfast and kept making a short “ee” sounds over and over most of the morning. Tried gymnastics class, which was a little more structured and stressful than I expected. Even though several of the kids got cranky or whiny at different points, I really noticed a difference in how they participated in group activities compared to Simon. He enjoyed all the neat stuff to play on but was very unhappy about having to wait. He also seemed to have no concept of following along with what others were doing. Still, he was very comfortable with the instructor, and she was very patient and said he did just fine and the activity could only be good for him. He woke up in an unpleasant mood from his nap, and somehow seemed like he wanted to say something and was very frustrated. He perked up during playtime with Daddy, then spent some quiet video time, after which he was very wired. He stayed up a little late and had a bath downstairs. He seemed to enjoy the novelty. He babbled a lot all through the later part of the evening. He stilled babbled a little after story time, but went to bed peacefully enough.
Back to what works for us:
Kind of a crappy morning. “Modeling” the ASL sign for “more” (which is a little different from Simon’s) while saying “mmm-more” over and over again (on the new speech therapist’s recommendation) just seemed to confuse Simon. He fell twice at the library, and I kept trying to restrict his mess-making, because a librarian was staying so close by, so he was in a pretty bad mood. Both our moods stayed fair to rotten through the rest of the errands, and Simon seemed not to remember his “more” sign and kept using the one for “pacifier” instead, even though he was trying to get more grapes and even though I kept asking him to say “more”, which he usually understands. Finally I gave in when he made it clear at home what he really wanted was just to sit on my lap and watch a video together. So we made a change. I got out his favorite Pooh video, sat with him until he got up to play with the new toys and his macaroni box, and we ate a nice lunch together in front of the TV. At naptime I put Eeyore, Tigger, and Piglet in his crib by his head, and he smiled and went to sleep without a fuss. Time to get back to what works for us, and we’ll let the new ideas fit in where they can.
Ended up having a very nice afternoon and evening. After not having seen the sign at all for at least a day, Simon even went up to our cat, Charlene, first made a sign for water, then turned one hand over and made our sign for “kitty”. I got very excited and let him know how wonderful that was. He then went up to our other cat, Andrea, and did the same thing. After that we played outside, including some time with sidewalk chalk. He was happy and active through the evening.
Every bit of progress that Simon made when he was little was exciting and noteworthy for us. Truth be told, it still is. We haven’t been able to take a lot of things for granted, because each step forward represents so much time and effort for him and for us. It has never been simple or easy, but it’s been tremendously rewarding. I hope it’s made us better people. It’s certainly made us more appreciative of all that we have.